This webinar was recorded on July 16, 2024
Asthma and allergy treatment has seen remarkable innovation in the last 25 years, but this progress is still not reaching everyone. More than 25 million Americans have asthma and 50+ million have allergies. These conditions disproportionately impact Black, Hispanic/Latino and Native American communities. Social, economic, and environmental factors often play a key role in causing asthma and allergy disparities. Join us as we explore disparities in allergy, asthma and immunologic diseases and how to best help under-resourced communities.
Speaker:
- Nancy Joseph, DO
Dr. Nancy Joseph is double board certified in general pediatrics and allergy/immunology and is currently based in Massachusetts. She is a consultant and medical advisor for the Allergy & Asthma Network. Dr. Joseph is a member and fellow of the American College of Allergy, Asthma and Immunology and the National Medical Association (NMA) in which she is active locally and nationally. She has collaborated with the NAACP speaking about COVID-19 during the height of the pandemic and has been featured on NMA talks as an expert panelist discussing asthma in the African American community. Dr. Joseph has been awarded Top Physician Under 40 by the NMA. Dr. Joseph hosts the โHow Do You Medicineโ podcast highlighting healthcare professionals doing medicine their way.
This Advances webinar is in partnership with the American College of Allergy, Asthma & Immunology. ACAAI offers CMEs for physicians for this webinar. If you are a member of ACAAI, you can obtain CME through the member portal for Advances webinars.
All attendees will be offered a certificate of attendance. No other continuing education credit is provided.
CME is available throughย ACAAI for this webinar.
Sponsored by the American College of Allergy, Asthma and Immunology
Transcript:ย While this transcript is believed to be accurate, errors sometimes occur. It remains your responsibility to evaluate the accuracy and completeness of the information in this transcript. This transcript is not intended to substitute for professional medical advice.
Catherine:ย Hello, everyone.ย You’re going to allow some timeย for some other folks to joinย us, so in the meantime, let meย know where you are from.ย Put it in the chat so I can seeย where in the world you are.
Catherine:ย OK, were going to go ahead andย get started.ย Hello everyone.ย Thank you for joining us today.ย My name is Catherine Blackwellย and I am the chief healthย equity officer for allergy andย asthma network.ย Welcome to this afternoon’sย webinar.ย We are in for a real treatย today with Dr. Nancy Joseph asย our presenter.ย We have a few housekeepingย items before we start today’sย program.ย First, all participants will beย on mute for the webinar.ย We are going to record today’sย webinar and posted on ourย website within a few days.ย You can find all of ourย recorded webinars on ourย website atย allergyasthmanetwork.org.ย You can scroll down to theย bottom of the page to find ourย recorded in upcoming webinars.ย This webinar is going to beย about one hour including timeย for Russians.ย We are going to take thoseย questions at the end of theย webinar but you can put yourย questions in the Q&A at anyย time.ย The Q&A box is at the bottom ofย your screen.ย So we will have somebodyย monitoring the chat if you haveย questions or need some helpย during your going to get to Rezย many questions as we can beforeย we conclude today’s webinar.ย This webinar is in partnershipย with the American College ofย allergy Atlanta immunology.ย They offer CMEs for physiciansย and attendance credits for allย others.ย You can create a free accountย and obtain CME for attendanceย credits through the memberย portal for advance webinar.ย All attendees will be offered aย certificate of attendance andย no other continuing educationย is provided.ย A few days after the webinar,ย you are going to receive anย email with supplementalย information and a link toย download the certificate ofย attendance.ย We are going to also try to addย the link to the certificate inย the chat.ย So let’s get started.ย The base topic is healthย disparities and allergies,ย asthma and immunologicย diseases.ย Allergy treatment has seenย remarkable innovation in theย last 25 years.ย But the progress is still notย reaching everyone.ย More than 25 million Americansย have asthma and 50 million plusย have allergies.ย These conditionsย disproportionately affect andย impact black, Hispanic, Latinoย and Native Americanย communities.ย Social, economic andย environmental factors oftenย play a key role in causingย asthma and allergy disparities.ย So join us as we exploreย disparities in allergy, asthmaย and immunologic diseases andย how to best help under resourceย communities.ย It is my distinct pleasure toย interest our speaker Dr. Nancyย Joseph.ย Dr. Joseph is a double boardย certified and generalย pediatrics and allergyย immunology and is currentlyย based in Massachusetts.ย She is a consultant and medicalย and Pfizer for the allergy andย asthma network.ย Dr. Joseph is a member andย fellow of American College ofย allergy, asthma and immunologyย and the National medicalย Association in which she isย active locally and nationally.ย She has collaborated with theย NAACP speaking about COVID-19ย during the height of theย pandemic and has been featuredย on NMA talks as an expertย panelist discussing asthma inย the African-American community.ย Dr. Joseph has been awarded topย physician under 40 by the NMA.ย Dr. Joseph postS the — postSย — HOSTS the ”ย how do you medicine”ย podcast. Thank you so much forย being here and I will turn itย over to you now.
Dr. Joseph:ย Thank you so much for havingย me, Kathryn.ย Thank you so much to theย allergy and asthma network forย having me and talking aboutย this very important topic.ย So today we are going to touchย on everything.ย Typically we touch on eitherย asthma or allergies but todayย we are going to add anotherย element which is theย immunologic diseases.ย People touch a little bit onย immunologic diseases first andย then we will go from there.ย Let me make sure my slidesย advance first. Perfect.ย Wonderful.ย So as Catherine said I amย double board certified whichย means I am a pediatrician andย allergist and I see people inย various — that means in theย allergy and asthma world and inย the in the knowledge of world Iย see everyone and in the generalย medicine world, I only seeย pediatrics.ย Another thing that I to put onย ‘s, if you want to connect withย me in the digital space, myย Instagram is typically whereย you will find me.ย What I will do is I will putย that in the chat now because Iย always forget.ย So I will put that there and Iย am on LinkedIn as well and Iย will get that in the chat asย well.ย That way I don’t forget becauseย I will inevitably used to.ย — do so.ย Let me know if you didn’t seeย it, can’t see it, and I willย repeat it.ย After the presentation, getย started.ย I have no disclosures at thisย time.ย Some learning objectives, weย are really going to hit on someย stance because it is reallyย important to use stats to helpย bring the impact to life, toย really understand the impact ofย health disparities, why healthย disparities is important andย why we are having severalย webinars about it and why it isย important to come together toย talk about it and bring aboutย action steps as to how we canย best move forward to move theย needle to more health equity.ย We are going to examine theย disparity immunologic diseases,ย some inclusive treatment plansย and possible interventions.ย So that if the general learningย objectives and now let’s talkย about where we are headed moreย detailed.ย First we will define whatย health disparities is.ย Again, we will jump intoย statistics about variousย diseases and we will talk aboutย how health disparities areย really impacting allergicย diseases.ย I will give you some resources,ย and possible interventions.ย So it is a jampackedย presentation, so feel free toย put some questions in the Q&Aย or if you need me to go back toย another slide later, I can doย that as well.
So first, we are having thisย whole webinar about healthย disparities and certainย diseases, but let’s firstย identify what they are.ย First, health disparity reallyย just means a lack of healthย equity.ย By definition, health disparityย is health differences linked toย economic, social andย environmental disadvantages.ย So they are nonmedical factorsย that influence health outcomesย according to the CDC and anย article that had the definitionย specifically of differencesย linked to social andย environmental disadvantage.ย So health disparities affectย every aspect of society and itย affects social determinants ofย health.ย That is why it is veryย important to not only recognizeย it, but trust it.ย I am a more visual person.ย Things solidify better with meย when I see them.ย And so education access andย equality, neighborhoodย environment and economicย instability,ย interventions in these areasย is really what impact healthย equity.ย So I really wanted to use thisย figure to really bring home theย fact that health equity andย healthy quality are not theย same.ย Equality means if you look atย these figures, if we wereย talking about the quality thatย all has one box under theirย legs.ย But that is not helpful,ย because what is causing oneย person not to reach the appleย is not the same as the other,ย so getting them one box eachย would not be sufficient forย some and would be too much forย the other.ย Vs.ย equity allows you to have equalย access or not equal, butย equitable access to healthย care.ย So you get what you need withย equity vs.ย just trying to give the sameย thing to everyone despite themย not needing the same thing.ย So health equity would lookย like this person needs threeย boxes, this person needs two,ย this person needs one.ย So now let’s jump into healthย disparities by disease type.ย We will talk about immunologicย diseases first, but the firstย step is trying to understandย what that even is.ย Often times when I say that Iย am in allergy immunologist, theย immunology part is what peopleย have the most questions about,ย what it even is.ย And a lot of people have heardย of and allergist, and a lot ofย people know what it is to beย allergic to something, but Iย find that immunology falls byย the wayside often so I reallyย wanted to take this time toย talk about what immunology evenย is and what the immune systemย is.ย Immunology if the study of theย immune system.ย The immune system is what Iย like to call our soldier.ย It is the system that protectsย you against things.ย S
o it is your body’s defense.ย Daily we have things trying toย invade us and we need ourย soldiers, our immune system toย really protect us and make sureย that things don’t go into ourย system that don’t need to beย there.ย Invaders, if you will.ย Bacteria’s, virus.ย In general there is immuneย system, but then when your bodyย starts to attack itself it isย now called autoimmune.ย So typically, autoimmuneย diseases fall into the categoryย of other specialists, that typeย of thing.ย And then when your immuneย system fails, it is an immuneย deficiency.ย That is where an immunologistย like me would come in.ย I call that man down.ย There all or a part of it thatย is either absent or not workingย properly.ย That is what immune deficiencyย is called.ย Sometimes you are born withย that and sometimes you acquireย it.ย So that denotes whether or notย you have a primary immuneย efficiency or a secondaryย immunodeficiency.ย A primary immune deficiencyย typically is inherited, startsย in childhood.ย We’ve heard of bubble boyย disease, people who haveย different parts of the immuneย system that have multiple wivesย of their immune system missingย which makes them incrediblyย susceptible to disease that youย and I would just, our soldiersย would just fight no problem.ย We wouldn’t even know theย difference but thoseย individuals get sick reallyย easily, and that would happenย since childhood and that isย typically primaryย immunodeficiency.ย Secondary immunodeficiency isย an acquired thing.ย I wasn’t born with it andย somehow I picked it up alongย the way.ย One of the most common ways ofย developing acquiredย immunodeficiency is ifย something , a medication ofย some sort caused a come eyes ofย that particular immune systemย or compromise a bat asย chemotherapy.ย We know chemotherapy attacksย the bad cells but in general itย also attacks other cells thatย are good guys.ย That can lead toย immunodeficiency and might leadย to you seeing someone like me,ย and immunologist. So that ifย the nuts and both of whatย immunology is.ย Let’s talk about primary unitย efficiency in numbers becauseย that is the disparity lens thatย we are going to use.ย Primary immunodeficiencyย affects over 6 million peopleย worldwide.
One in 10,000 people in theย world have a primaryย immunodeficiency.ย It is two times as high theย likelihood of primaryย immunodeficiency in whiteย individuals vs.ย black and Hispanic individuals,ย but the caveat is it isย underdiagnosed in black andย Hispanic individuals, soย because minorities areย underrepresented in studies,ย what happens is we see thisย number that is twice as high,ย but with the understanding thatย those numbers are skewedย because there is a lack ofย rivers and take in minoritiesย in these studies, minoritiesย tend to be underdiagnosedย anyways, so this is probablyย the only place where they wouldย be very few places in thisย presentation where you will seeย the number of this disease isย twice as high in whites vs.ย black and Hispanic individuals.ย However it comes with theย caveat that the number is whatย it is, but we don’t really knowย the accurate number becauseย there is under diagnosis inย minority populations.ย To that is the immunodeficiencyย part of this presentation.ย Our first allergic disease weย will talk about is foodย allergy.ย The food allergy, first, 10% ofย adults in the U.S.ย have food allergy.ย 19% of them believe that theyย have a food allergy.ย So there’s 9% that may thinkย they have food allergy but whenย they get evaluated and see theย allergist, it is proven that itย is not a food allergy at all,ย so that is another reason or aย reason to make sure you see aย specialist because you may beย avoiding foods unnecessarilyย and it may not be the issue soย it is important to see aย specialist. And in children,ย one in 12 children in the U.S.ย have a food allergy.ย So the numbers are differentย whether we talk about childrenย vs.ย adults and we will talk aย little bit more about thatย later.ย So let’s talk about allergy andย the black community.ย Food allergy is four times moreย frequent in African-Americanย individuals and they have aย higher rate of death from foodย allergies.
There’s higher levels ofย various allergy cells in theย black community including aย cell called IGE.ย IGE is an allergic cell.ย This varies cells around yourย body.ย Part of the immune system isย called immunoglobulins.ย That word was thrown around aย lot in the hype of COVIDย because that is what you use,ย the IGG is what you used to seeย if you’ve been exposed toย something.ย It your memory immunoglobulinย so there are the IgG test forย COVID and people were gettingย to see if they had beenย exposed.ย That is where immunoglobulinsย come in.ย Your body’s memory system toย say I’ve seen this before.ย So African-American childrenย have peanut allergy that isย present eight times higher rateย than their white counterparts.ย And there is a higher rate ofย food allergy, corn, shellfishย and fish and a three-timeย higher rate of having shellfishย allergy in African-Americanย children.ย They are more likely to haveย multiple food allergies andย African-American children withย allergic diseases or a parentalย history have a high instance ofย shellfish allergy.ย This is all from a study thatย was found with Dr. Davis andย another study in 2007 that wasย done saw these health disparityย numbers, these staggeringย numbers where you need toย things like eight times higherย rate.ย That is why I love puttingย numbers on the slides.ย It really helps bring home howย huge the health disparityย really is when we talk aboutย the black community, butย especially in children.ย So let’s talk about foodย allergy and research.
The genetics of that is stillย being studied.ย There is some genetic variancย that occurs more frequently inย African-American people.ย The findings are helpful, butย the findings don’t incorporateย certain populations as much orย very many individuals on thatย population, and that’s aย problem.ย They are five times more likelyย to be referencing food allergyย literature and African-Americanย individuals and access to careย which we will talk about whenย it comes to health disparities.ย Access to care plays a role.ย There is wonderful study, theย Ford study that is helpingย combat this and so I thought itย would be good to spend a littleย bit more time on that study toย really highlight some good workย that is being done.ย So the Ford studyย — forward study had white andย African-American children agesย zero to 12 with food allergies.ย And they found thatย African-American children haveย three times higher chance ofย having a shellfish allergy andย 2.5 higher chance of having aย regular fish allergy.ย There’s less than 50% of themย with a confirmatory testing orย were evaluated by an allergistย and they have a higher rate ofย food related anaphylaxis ERย visits.ย So this particular statisticย talking about 50% of theseย individuals got confirmatoryย testing.ย So imagine all theseย African-American children haveย food allergies by history butย only 50% of them were able toย get that confirmed.ย That leads back to theย disparity we talked about, theย ball, when we talked about 10%ย of individual that actuallyย have a food allergy VS.ย 19% believing they have a foodย allergy.ย There’s already a difference inย the actual food allergy and theย belief thereof.ย But then we only have 50% ofย them getting to see theย allergist to get confirmatoryย testing.ย So there may be individuals whoย are unnecessarily avoidingย things or maybe their reactionย is not allergic in nature andย more studies are meeting, moreย testing is needed.ย But those individuals are notย getting that test.
That isย really an important thing toย bring up, to bring light to toย help hone in this disparityย between not only diagnosis, butย also access and seeingย specialists.ย So this is a food allergyย action plan.ย As someone with a food allergyย should always have an actionย plan.ย That is to say, what should youย do should you have a reaction?ย and what should you give minorย reactions, VS.ย major reactions like hives andย tongue swelling, difficultyย breathing, throat tightness,ย that type of thing.ย That is what he food allergyย action plan comes in handy.ย It is a guide to what to do.ย But research shows more wayย children are being given thoseย action plans andย African-American children.ย So when they do see theย specialists, they are not evenย given the action plan, which isย unfortunate because that isย really a tool to anybody takingย care of that child, daycare,ย babysitters.ย For people to know what to doย and when.ย So let’s talk a little bitย about when we talk aboutย disparities, not onlyย diagnosis, but disparities inย access.ย When you are food allergic, itย is important to have access toย safe food, but food insecurityย really brings a challenge toย that.ย A food insecurity is limitedย access to good quality food andย a lower quantity of food.ย Allergy adds the network canย look on their website for ideasย of how to help with those foodย costs because a lot of times,ย allergic foods cost more thanย nonallergic, foods that are notย allergy friendly.ย Food diversity.ORG has aย network and it can connectย individuals with consistent andย reliable sources of safe foodsย which can make a world ofย difference if you or anyone youย know have food allergies.ย You know it can make a world ofย difference to know that this isย a reliable and safe source forย food allergy — allergen safeย foods.
Definitely that website is downย here.ย Again, if you noticed there isย only one D.ย So another entity that’s reallyย making a huge impact in theย food energy world — allergyย world is the food qualityย initiative.ย It is founded by Emily Brown, aย cofounder of something calledย free From market that has aย mission to provide peopleย diagnosed with celiac diseaseย equal access to food that theyย need to be healthy regardlessย of race, economic status.ย Really just helping to commentย the disparities in access ofย allergy safe foods and helpย fight food insecurity andย inequity.ย Or lack of health equity whenย it comes to food.ย It is a great organization andย she had the market which reallyย is an online platform with overย 1500 nutrient dense foods thatย you can order to your door.ย It helps people with diabetes,ย high blood pressure, anyย gastrointestinal disorders,ย that type of thing.ย It is a personalized,ย diet-specific food deliveredย straight to your door.ย So this is the website.ย When you get there, you willย see this, and it asks you toย create an account or if youย already have one, you can justย login.ย Just a great source.ย So that is the food allergyย part.ย Wanted to give you guys thatย and access to that.ย Now let’s talk about eczema.ย Let’s start with some numbers.ย First will be talk about eczemaย in general, it affects moreย than 10% of children, or thanย 5% of adults.ย When you have one allergicย disease, food allergy, asthma,ย seasonal allergies, all ofย those are allergic diseases.ย It increases the risk ofย developing eczema.ย Typically it is one of theย diseases of the call the atopicย March.ย People who are prone toย allergic diseases will haveย eczema first and then developย another allergic disease,ย typically food allergies andย then they will develop asthmaย or seasonal allergies you areย just marching through theย diseases.
That’s talk about eczema in theย black community.ย Atopic dermatitis is aย technical term.ย Talking about specifically inย this presentation, I’m using itย to eczema, but just know thatย sometimes the vernacular may beย a little bit different.ย If you have any questions, withย say you see your doctor andย they are using a different typeย of dermatitis, make sure youย ask them so what is thatย exactly?ย I’m saying this becauseย sometimes in the medical world,ย we can get lost in theย vernacular.ย We might not quite get it, so Iย wanted to make sure to plugย that in here so that you guysย know that in this presentationย I’m using eczema and atopicย dermatitis interchangeably.ย Sometimes that’s not the caseย in other settings.ย So we will talk about eczema.ย It affects black individuals atย a higher rate than whiteย individuals.ย Like children are less likelyย to cedarwood colleges, twice asย likely to get diagnosed withย atopic dermatitis and twice asย likely to have a severe form.ย They have twice as many officeย visits, three times as muchย missed school all because ofย their eczema.ย Really staggering numbers forย this particular disease.ย It has a higher disease burdenย in the black community.ย Again, they are more prone toย have more severe disease and ofย course, that lasts longer.ย Decreased genetic risks forย atopic dermatitis, yet theyย have an increased likelihood ofย having severe disease.ย Black children are almost sixย times less likely to have theย mutation that causes eczema.ย There is a genetic mutationย that makes you more prone toย having severe eczema.ย Black children are six times asย likely to have that.ย So what we take away from thisย is genetics is not the fullย picture.ย It’s not even the majority ofย the picture.ย Though the extent of theย genetic effect is unclear, dueย to a lack of diversity inย research, there’s a lack ofย diversity in research so weย don’t know the extent to whichย genes affect eczema in theย black community, all we know ifย the genetic dictation that weย do know leads to severe eczema,ย lack children are less likelyย to have it.ย So that lead you to believeย that there’s other issues atย hand really causing thisย disparity.ย So it is definitely notย something we can just point theย genetics as to why theseย numbers are so much higher andย so staggering.ย We talk about healthย disparities when it comes toย eczema.ย It is multifactorial.
Socioeconomic status being oneย of the factors.ย For socioeconomic status leadsย to more severe atopicย dermatitis.ย It’s a multidimensional factor,ย all factors, structural racism,ย the country needs healthย disparities, socialย determinants of health.ย And then physical environment.ย A study showed that blackย children in highly segregatedย communities tend to have moreย severe eczema.ย So then again, this is not evenย genetics.ย We know that already.ย But there are social constructsย that are in place that thenย lead to physicalย manifestations.ย We talk about segregation.ย A highly segregated communityย alone, atopic dermatitis.ย So let’s talk about what itย even is.ย We talked about the numbers,ย the disparities of the numbers,ย but let’s quickly take a pauseย to talk about what is eczema,ย what is atopic dermatitis?ย It is an inflammatory disease.ย Relapse and remitting.ย It is just a waxing and waningย of nature.ย It is an inflammatory processย and can be inherited orย acquired.ย We talk a little bit about theย genetics already.ย We talked about the genes andย the less likelihood of blackย children to have that.ย The skin integrity and theย effects of eczema on that.ย Eczema is a breakdown of skinย integrity.ย You are decreasing the skinย barrier function and whatย happens is you have more waterย loss.ย Your skin is compromisedย because it is holding waterย like it is supposed to.ย Enhanced water loss leads toย dry skin.ย Dry skin leads to itchy skin.ย Now in general, you scratchย because you itch and you it’sย because you scratch.ย I know you guys up for thatย before.ย It really is just kind of aย never-ending futile cycle.ย It could end, but I meanย without treatment or addressingย it.ย So I really just want to be onย this site for just a couple ofย seconds.ย I really wanted to talk aboutย what it looks like in variousย skin and how important it is toย note that eczema looksย different on various skin.ย It is important to note becauseย sometimes they can beย under-diagnosed depending onย the skin color.ย It is definitely very itchy, isย red lesions that can be plaquesย or patches.ย Depending on the age, it tendsย to be in flexor services.ย That means dry, scaly patchesย in adults.ย But chronic atopic dermatitisย leads to thick and leatheryย skin which is what you see hereย which we call in the medicalย world like edification.ย All that really decreases yourย sleep, so lack of quality sleepย and lack of quality of life.ย Something disturbing the,ย especially chronically isย certainly sure to affect yourย quality of life.
But also notice when we talkย about redness, if we areย depending on redness toย diagnose a particular disease,ย that is a faulty way becauseย darker skin, you are seeing theย redness.ย If you are depending on theย redness you’re going toย misdiagnose a population.ย So we talked about the qualityย of life that has, the effectย that it has on particularย individuals but moreย specifically, it does alsoย affect the mental health of theย caregiver.ย It impacts your mental healthย whether you are an adult orย child and adults with a topicย tenders are found to haveย increased propensity to haveย anxiety and prescient and kidsย have increased risk ofย developing ADHD.ย So affects everywhere.ย And that in general there’s aย lack of understanding of theย disease, especially as aย chronic disease.ย The perception of others may beย this person just never takesย care of their skin or theyย never moisturize without theย understanding that this personย has an increased propensity toย have dry skin and having thatย scalyness.ย It is not that person’s fault.ย It is not that person doesn’tย take care of themselves, is theย increased propensity.ย A lack of understanding of whatย eczema is and what really givesย way to that and the dryness andย things like that really canย affect the perception of othersย and really how that personย feels, how you make that personย feel that those have eczema.ย So I really just wanted to showย what eczema can look like inย various skins of color.ย In general, if you are worriedย about something, talk to yourย doctor.ย You want to make sure youย advocate for yourself.ย It is better to ask than not toย ask.ย So treatment costs, cost is aย barrier when it comes toย equity.ย Black patients with atopicย dermatitis spend moreย out-of-pocket for medication,ย ER visits and lab tests.ย Again, we talked about theย staff that they have increasedย chance of having — going toย the ED because the eczema.ย Of course they spend moreย out-of-pocket money when itย comes to ER visits.ย It’s because of a decreasedย health care access and underย diagnosis.
Waiting for redness toย diagnose, you’re going toย underdiagnosed.ย There’s a lack of access toย health care which increasesย your chance of going forย something that maybe if you hadย better access or betterย treatment options or betterย access to a primary care doctorย or some specialist, maybe thereย would be fewer visits, betterย management of that particularย disease.ย So it is really allย interconnected.ย So there are some programs justย in general.ย There are some programs thatย can help save the cost ofย medications, prescriptionย pharmacy programs.ย We’ve all known sometimesย buying something like Benadrylย or Zyrtec, that is the nameย brand.ย Often times, that is cheaperย than having to buy theย particular name brand.ย Particularly when the web toย see a specialist when it comesย to eczema, you just want toย make sure that you know theย particular food figure of that.ย In general, talk to yourย doctor.ย They will help you decide ifย you need to see a specialistย and if so, which one to see.ย Just know that they are thereย for you.ย Work in conjunction to helpย determine with the mostย appropriate thing is.ย So I’m going to go through thisย preparing for a doctor’s visitย here.ย But know that I really wantedย to put it at the end, but I’mย going to kind of drive home toย help the equity piece of thisย presentation more at the end.ย It just happens to get betterย here.ย But just in general when we areย talking about how to get readyย to see a doctor, things youย should know, often times as aย specialist we may feelย overwhelmed.ย As a specialist you’re just notย sure what they need to know andย maybe they’re asking youย questions and you think gosh, Iย don’t know all this, I didn’tย know you are going to ask meย all this.ย Things you want to note so thatย when you are prepared when youย go and see a doctor, especiallyย a specialist, you are preparedย for those questions becauseย that specialist, we are justย not meeting as a new page andย severe going to ask you moreย specific questions, detailedย questions.ย This is my cheat sheet.ย First timeline is important.ย When did your symptoms start?ย Doctors don’t need specifics.ย They don’t need to know youย started on January 15 atย nighttime.ย They just need to know inย general.ย About five months ago.ย About five years ago.ย That type of thing.ย And you want to note anyย triggers.
Give us as much information asย you can come more specificย information.ย I notice when I do this, itย gets worse.ย When I do this, it gets better.ย That way it helps us rule outย certain things and then help usย with a list of possibilitiesย for your particular symptom.ย Also you want to make sure youย keep track of what thank youย tried.ย My doctor tried a cream, itย didn’t work.ย My doctor tried anย antihistamine, it didn’t work.ย My doctor tried whatever theย pill is, a lot of times in yourย particular chart, the patientย chart will either have theย medication that the doctor hasย given sometimes if you go toย the same system your specialistย can see that and sometimes theyย might not be able to.ย This is what I was on and itย did work or I didn’t work andย important family history.ย Maybe this is the time to askย your mom did anybody ever haveย any issues with eczema orย sometimes have they had anyย issues with itchy skin or didย they have any skin conditions?ย It may be possible that youย never talked about or thoughtย to defend it very well.ย So that is my Chi-Chi for youย for a doctor’s visitย specifically.ย Especially a specialist. So nowย it’s jump into some ads numbersย real quick.ย I’m going to go through thisย kind of fast because I want toย talk about some healthย disparity issues andย interventions.ย Why is it important?ย In terms of health disparity,ย the answer is 26 millionย Americans live asthma.ย It is the number one cause ofย missed school days and when itย comes to asthma and healthย equity, it affectsย African-American people more,ย especially in underservedย areas.ย The prevalence in population isย increasing.ย As income decreases, asthmaย prevalence increases.ย Let’s talk about specificallyย the numbers when it comes toย asthma African-Americanย individuals.
African-American individualsย are 30% more likely to haveย asthma.ย There are three times moreย likely to go to the emergencyย room.ย Three times more likely toย succumb to an asthma death.ย We talked about that with foodย allergies, right?ย If you are more likely to haveย more severe disease, you’reย more likely to get elevatedย care.ย Emergency room visits areย increased and when it comes toย asthma in children, the stat isย even more staggering.ย African-American children areย seven times more likely to haveย an asthma death than theirย non-Hispanic whiteย counterparts.ย These numbers are our reasonsย we are even having theย conversation when it comes toย African-Americans and asthma.ย When it comes to healthย disparities.ย Health disparity is important,ย I know that.ย I like numbers because numbersย don’t lie.ย Numbers can drive home.ย Numbers didn’t drove home whileย it is important to increase theย representation in generalย whether we’re talking aboutย research, the clinical setting,ย immunities.ย We want to make sure that weย bring home to you why theseย talks are important.ย So what can be done?ย I will talk more in generalย later, but what can be doneย about asthma in general?ย First, awareness is key.ย Without knowledge, the peopleย perish.ย I want to increase awareness ofย asthma education.ย Education of asthma andย allergic diseases and theย impact they have.ย There are some partnershipsย that we have.ย The National medicalย Association, which is near andย dear to my heart.ย It is an organization thatย really helps combat disparitiesย and represents over 25,000ย African-American or physiciansย of African dissent and itย really helps with health equityย and really helps create a voiceย for a minority patient.ย Of course there the EPA.ย So you want to make sure thatย if you want to go to theseย organizations, websites, thatย really helps.ย When you need to know what workย they’re doing and how you canย get involved, the asthma alleyย network as a program which hasย been cross a to patient.ย Talks like this help with theย process because it increasesย with increasing healthย awareness, awareness of healthย disparities.ย We want to be a voice forย health equity.ย Getting involved with yourย community and with research.ย Seen where in the — medicalย Association you can be of help.
Legislation is important.ย The asthma allergy network doesย a call on the day of the hillย which is where we advocate forย legislation that really helpsย move the needle forward comesย to health equity in the allergyย asthma space.ย Help allergy practitioners,ย legislation helps outagesย practitioners.ย And it helps us help you, andย helps us better serve you.ย Going to baby a summit,ย conferences for us as aย provider is helpful but forย you, this various supportย groups you can join.ย That help you learn not onlyย about what the problem is, butย help you move the needleย forward in terms of being aย voice.ย I’m going to close out withย really talking about the bigย picture here when it comes toย health equity.ย As the stance alone demonstrateย the need for equity especiallyย in children, because childrenย are the future, but the talkย about more specificย representation, health equityย and how we can address theย issues.ย Representation matters, peopleย like me, less than 5% of us areย black.ย The JAMA found that theย residence of a black physicianย in a particular county improvesย many aspects of the community’sย health.ย Just for presence.ย That doesn’t mean they have toย be the doctor.ย None of that.ย Just the presence of a blackย physician in a particularย county improves adherence toย treatment, means that peopleย are more likely to getย decreased care and there isย decreased mortality of theย black patient.ย The first two was not justย black patients, butย specifically a decrease inย mortality.ย So representation matters isย why we are having these talks.ย Now talking about healthย disparities I wanted to closeย out with how we get here andย how we get out of here.ย First let’s look at thisย visual.ย I saw this and was like, thisย is amazing.
Really talking about how we gotย here.ย Structural inequities.ย Race and that is the, languageย barriers.ย Again, there is up andย downstream factors that led toย health disparities.ย Researching institutionalย barriers, we talked about that.ย Decreased diversity andย research personnel.ย Decreased diversity in researchย participants in general.ย There’s is built environmentalย exposures.ย As redlining, housing,ย segregation.ย At school, again, they are aย problem when we talk aboutย allergic diseases.ย Increase allergens are notย helpful with that.ย Structural barriers for caretย delivery of allergy andย immunology, there’s a decreasedย diagnosis and treatment.ย We talked about howย African-Americans are lessย likely to be diagnosed inย general with if and allergicย diseases.ย We also talked about how in theย less likely to get somethingย like a food allergy actionย plan.ย Access decreases diagnosis andย decreases treatment.ย You can’t trade something thatย you would are not diagnosed.ย You are thinking I am lookingย for redness for eczema andย underdiagnosed, they are notย being treated for they reallyย have.ย So decreased access toย specialists is an issue weย talked about.ย Less than 5% are black.ย There’s attention toย psychosocial needs that are notย met.ย Increased prevalence that leadsย to adverse health outcomesย downstream.ย The increased prevalence ofย different diseases we talkedย about.ย So therapeutic hesitancy, I’mย headed to detectives because Iย don’t know about it, there is aย trust issue here.ย So all of these are the roadย upstream and downstream,ย factors on the road to how weย got to our health disparitiesย and how we are we are.ย This article really brings homeย some suggestions as to how weย can intervene.ย It is important for us toย sometimes come from a differentย background, so what we think inย terms of our biases, we haveย these micro aggressions that weย aren’t aware of.ย Things like that.
Equity training helps withย that.ย Participatory environment ofย education and education ofย at-risk communities, activeย recruitment of diverse pricingย quote and research.ย Recruiting staff from differentย backgrounds.ย If you have a diverse staffย increasing and research orย recruiting for research, itย increases the chance that youย might have a diverse populationย of participants.ย Advocacy and policy work whichย we talked about.ย That would help increase accessย to clean and safe housing.ย Reinforcement — reimbursementย services we spoke about inย terms of food insecurity’sย things like that.ย Tracking care gap data reallyย helps us bring home at riskย populations are at riskย populations, tracking that dataย to help us get the informationย we need.ย Of course there are many otherย things we can do, but I feltย like these were really greatย proposed interventions thisย article that really helped pay,ย this is where we been, theseย are things that could reallyย help.ย This incredible health equityย to have a disparity situationย that we are in.ย I wanted to make sure I leaveย at least 10 minutes forย questions if you have any sizeย you want me to go back to.ย Also, let me know but with thatย I will bring it back toย Catherine and I will stopย sharing my screen.
Catherine:ย Wow.ย That was a mod of greatย information as always.ย There’s a couple things that Iย want to bring up and this mightย even be a topic for your nextย podcast, I don’t know.ย But you talked about theย alarming numbers of four timesย more frequent inย African-Americans with regardsย to food allergy.ย 30% more children at risk inย the black community.ย And what I have seen out in theย field as well as being a healthย care professional, being aย nurse myself, and being anย African-American female, a lotย the folks in our community,ย they don’t even really knowย about food allergies.ย If they eat something, not thatย they don’t know about it, butย they just interpret it aย different way.ย If they eat something that doesย not agree with them they willย say he gave me indigestion, letย me take a Pepcid or a Tom’s.ย I ate this tomato with theseย strawberries and I broke out.ย Yeah, I’ll just take a Benadrylย and they just keep on going.ย And then it comes in play whereย they don’t have access to anย allergist. They go to theirย primary care physician.ย You have a lot of the folksย that live in underservedย communitiesย in a food desert where theyย always Chinese restaurants,ย McDonald’s or whatever, and youย have a single mother with fourย or five children, she justย wants to get her children fed.ย So she just does the best thatย she can.ย The good veggies, freshย produce, that stuff is notย available to them, so it is aย whole lot of socialย determinants of health thatย impact this and it is such aย problem.ย You know I want to save theย world just like you do.ย Where do we start?ย How do we bring more awarenessย about food allergies becauseย that is really crucial in theย community, and I just don’t seeย the uptake.
Dr. Joseph:ย Right.ย You brought the answer, and theย answer is awareness.ย The first step to solving aย problem is knowing that youย have a problem.ย So the first step to solvingย health equity is even knowingย what it looks like, what it is,ย where it is, that type ofย thing.ย And food allergies, again, youย can’t help someone’s foodย allergy if they didn’t knowย they had a food allergy.ย So my first step is really toย educate.ย This is what allergy is, thisย is what allergy isn’t.ย What is happening is theย mislabeling.ย Some people think they haveย allergies, they donโ’t.ย Some didn’t think they haveย allergies, they do.ย So you may not report it but ifย you don’t think it is anย allergy and then asking aboutย your medical history, now weย are talking about somethingย else.ย All this time you had shellfishย allergy.ย There is a lack of familyย history.ย Because maybe your mom and yourย grandma both had foodย allergies.ย All this time you had a wholeย generational history ofย allergic diseases that you haveย no idea of.ย That type of thing.ย First you want to increaseย awareness, you want to increaseย education of what it is to beย allergic, what it is to haveย allergy, and we really want toย destigmatize allergy because aย lot of time there is a stigmaย when it comes to allergy, whenย it comes to epinephrineย autoinjector’s.ย There are people who say Iย don’t need one.ย Well, be given to you becauseย of their risk.ย And having anaphylacticย reaction.ย You don’t get car insuranceย because you wereย accident-prone.ย You get car insurance becauseย you could have an accident.ย That type of thing.ย Because we know the risk of itย happening is high enough thatย we want to prevent it.ย When it comes to asthma, thereย is a stigma against the wordย asthma.ย There are individuals that haveย history incredibly consistentย with asthma, but if you don’tย tell the person the diagnosisย of asthma they will say no.ย That word has never been saidย to me.ย But they are on dual actionย inhalers, albuterol.ย So if we are treating it likeย asthma but we are not tellingย the patient they have asthma,ย what are we really doing?ย Are we really just sayingย sometimes I get difficultyย breathing when I have calledsย — colds?ย A proper diagnosis of asthmaย helps re-stratify a person whenย you talk about COVID and havingย something like Paxlovid.ย But if you were never told youย had asthma, you never think youย have asthma, if you don’t thinkย you have asthma you can’tย properly put yourself in aย particular risk category at theย height of the pandemic.ย So knowledge is really theย first step and without that,ย everything crumbles.ย If you don’t have knowledge andย awareness, we are in the uphillย battle.ย And before I forget, I wantedย to bring up the other webinarย that is happening, and that isย my fault, everyone.ย And going to quickly share myย screen for no other reason butย to say we are having a webinarย that is coming up that I wantedย to bring up.ย You guys probably can see myย screen, I will put it in.ย The next is on childhoodย asthma, August 21.ย I’m sorry, smart therapy Julyย 25 at four clock p.m.ย Eastern.ย Smart therapy and otherย patient-centered approaches.ย After that there’s childhoodย asthma August 21.ย And then there’s August 27 withย seasonal allergens.ย So I wanted to make sure I saidย that and I will stop sharing myย screen now, but I wanted to letย you guys know that there’s twoย July webinars and there’s oneย August webinar coming up so youย guys are hopping on.
Catherine:ย One of the questions, are thereย any cultural or dietaryย practices that could influenceย allergy and asthma management?
Dr. Joseph:ย Pardon me about allergy andย asthma management.ย Human practices that would keepย them from taking their inhalersย or tell me a little bit moreย about..?ย I mean, that person who posedย the question.ย Is it on the Q&A?
Catherine:ย Yeah.ย That is all the person said.
Dr. Joseph:ย Let me see if they have it inย the chat.
Catherine:ย I’m sorry, it is in the chat.
Dr. Joseph:ย OK it is in the chat.ย Can you give me a little bitย more specific that canย influence allergy and asthmaย management?ย Allergy and asthma in general,ย but tell me about what you meanย by influence allergy and asthmaย management specifically.ย Someone asks you are welcome,ย yes.ย That is important.ย I don’t specifically on handย have the numbers specificallyย in public housing, but what weย do know is that theย environmental factors that tendย to be associated with thatย increase the risk for asthma,ย how close you live to aย highway, urban population orย urban settings.ย But specific numbers I do notย have.ย Someone wants me to list theย upcoming webinars again.ย I will do that.ย Let me make sure that I answerย that question.ย I will just generally answerย that dietary practices questionย because I don’t think they giveย me any.ย Sometimes depending on theย culture, it could just be anย allergen field diet.ย Maybe you have a heavy seafoodย diet or something like that.ย In general, culturally thatย could make it harder forย somebody with a shellfishย allergy or fish allergy toย participate in various culturalย practices and that type ofย thing.ย That could really affect one ofย the keystones of managementย which is avoidance.ย It’s really hard if you areย gluten allergic and yourย culture is really heavily rice,ย it is really hard.ย Sometimes you feel left out andย things like that and there’sย cultural practices that make itย hard from that perspective.ย In terms of asthma, we knowย there’s a lot of culturalย practices that tree asthmaย historically and that may notย be as effective for thatย particular individual and itย may be hard to try to convinceย maybe one person in your familyย wants you to manage asthma thisย way but you are like, I saw myย doctor and they want me to useย these.ย That is what I mean.ย That is one of the aspects ofย the stigmatizing asthma and doย stigmatizing — de-stigmatizingย the treatment use for inhalers,ย understanding that your healthย practitioners are trying toย work with you to help you.ย We aren’t trying to dismantleย anything that has helped you inย the past or dismantle anyย beliefs, we are really justย trying to say research hasย shown these are really helpfulย in terms of inhalers and thingsย like that, and we know what isย in them because they areย monitored by the FDA so Iย really want you to use this andย complementary medicine.ย We are not against that at all.ย We just want to make sure we doย the best we can to adequate theย manager asthma but I canย understand there are someย cultural practices that may beย something that needs to beย addressed when we are talkingย about holistic practice andย holistically treatingย something.ย I hope that answers yourย question.ย Wonderful.ย In the chat there is a link toย the next webinar which is Julyย 26.ย So wonderful, wonderful.ย Perfect.
Catherine:ย So we are at the top of theย hour, actually a little butย after the hour.
Dr. Joseph:ย Did we miss any questions, andย so sorry.
Catherine:ย No, everything is great, youย answered everything.ย Thank you so much.ย This has been reallyย informative, just want to goย over the webinar is coming upย again so people can hear it asย well.ย First up as Dr. Josephย mentioned is smart therapy andย other patient-centeredย approaches toward asthmaย management which is going to beย presented by Dr. Angela Hoganย on July 25 at 4:00 Easternย standard Time.ย Then we will come back to Dr.ย Dave Dugas on August 21 at 4:00ย p.m.ย Eastern standard Time to talkย about childhood asthma and howย to teach children how to useย their inhalers which is goingย to be great.ย We are going to walk — welcomeย Dr. Maitland to discussย seasonal allergies andย optimizing treatment for eachย patient.ย So you will receive an emailย from Zoom in a few days with aย link to the recording, andย additional resources.ย So thank you again from all ofย us at allergy and adds theย network and join us as we workย every day to bring betterย together and close the gap inย disparities and improve healthย equity.ย Have a good afternoon.
Dr. Joseph:ย Goodbye, everyone.