Asthma Registry

 

What is the Asthma Patient Powered Research Network (PPRN)

Have you ever wondered how your asthma changes over time? Or how your asthma is different or similar to others? Now you can help us answer these questions and more with our Asthma Patient Powered Research Network (formerly Asthma 360 Registry).

The Asthma Patient Powered Research Network is a database in which we ask every person 18 years or older to share information about themselves in a baseline survey. Periodically, we ask people to return and answer similar questions.

Sign up here:
Logo for Asthma Patient Powered Network that links to the page you can register

How will participating in the Patient Powered Research Network (PPRN) help me and others?

When you participate in the PPRN, you will learn how to better understand and monitor your own condition. You will also be able to help us support the community and advance research. 

Our hope is that over time, we will obtain thousands of records in the registry. Researchers will then be able to analyze the data and better understand the natural history and progression of asthma. 

How do I find out more about the PPRN?

You can find out more and sign up to complete your baseline survey by visiting Patient Powered Research Network today. 

The initial survey takes less than 15 minutes and includes incentives to participate. This is your opportunity to contribute to research as we explore questions such as: 

  • Does lung function decline over time? 
  • Is Fractional Exhaled Nitric Oxide (FeNO) an accurate biomarker for Type 2 asthma? 
  • What percent of patients takes a biologic for asthma? 
  • How many asthma patients also have COPD?

Sign up here:
Logo for Asthma Patient Powered Network that links to the page you can register

What happens to the information I share in the Patient Powered Research Network?

All information you share will be secure and will never be used without your permission.

The initial survey takes less than 15 minutes and includes incentives to participate. This is your opportunity to contribute to research as we explore questions such as: 

  • Does lung function decline over time? 
  • Is Fractional Exhaled Nitric Oxide (FeNO) an accurate biomarker for Type 2 asthma? 
  • What percent of patients takes a biologic for asthma? 
  • How many asthma patients also have COPD?
Want to get involved in asthma research? Visit our Research Page.

Would you like help managing your asthma?

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Free Telehealth Asthma Coaching Program

Get free help to learn about your asthma and how to better manage it through Allergy & Asthma Network’s telehealth program. Connect with a professional asthma coach as part of a 6-week program using your phone, tablet or computer to help you manage your asthma and complete surveys to track your progress.

The telehealth program is for U.S. residents living with asthma. Are you eligible? Find out by taking our brief survey.

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Free lung screenings, COVID-19 testing and vaccines and patient education

Connect with us at one of our Not One More Life Trusted Messengers events designed to improve access to care for underserved communities. The program partners with churches and goes into communities to offer free health checks that include lung health screenings for asthma and COPD, COVID-19 testing and vaccines, and patient education.