Asthma Patient-Powered Research Network (APPRN) Registry

The Asthma Registry was a project to create a database of people with asthma living in the United States. The goal was to collect information about their asthma, such as:

• Symptoms they experience
• When they were diagnosed with asthma
• Their medical history
• How asthma affects their daily life
• Personal details like their age and gender

This database was made so researchers could study asthma and find ways to better help people living with this condition. The information in the registry came from surveys that people with asthma filled out.

Baseline and yearly follow-up surveys were done to learn about people’s asthma. The surveys asked about things like:

• Asthma symptoms
• Asthma diagnosis
• Medical history
• How asthma affects quality of life
• Demographics (like age, gender, etc.)

The data from these surveys has been analyzed. A full report will be available soon. This is an early version of the report.

Demographics

The Asthma Registry had more women (66%) than men (21%) participate

• Most of the people with asthma in the registry were:
  • White (55%), followed by Black (20%)
  • Between 35-50 years old.
  • Most people with asthma were diagnosed with asthma at 16 years old.
  • The top 5 states where people in the registry lived were:
    • California
    • Texas
    • Illinois
    • Florida
    • New York
    • Pennsylvania

Geographic residence distribution

The darker the color, the more people with asthma are from that state.

Asthma Control

• 39% of people had well-controlled asthma
• 38% of people had poorly controlled asthma
• 19% of people had not well controlled asthma
• 4% of people had controlled asthma

Recommendations

Allergy and Asthma Network recommends

• People with asthma who continue to have symptoms like coughing, wheezing, and waking up at night to learn about our asthma coaching program. 
• People with asthma from diverse backgrounds participate in studies to learn more Get Involved with Research webpage.