Our Research Work
We conduct our own research on issues related to asthma, allergies, eczema and related conditions. Our research aims to find answers to questions that are most important to patients and caregivers.
Our work is also used to inform policy development and patient engagement in research.
The North Star of our research is to make study results meaningful and relevant to the full asthma and allergy community. We undertake focused projects that include the perspectives of underserved populations.
Our current and past research work
The following programs are some of our work.
Corticosteroid exposure and cumulative effects in patients with eczema
Many people living with eczema use topical corticosteroids to help manage their symptoms. Prolonged topical corticosteroid use throughout a person’s lifetime can increase their risk of negative outcomes. This global patient survey was funded by Allergy & Asthma Network and the International Topical Steroid Awareness Network (ITSAN) with grants from Dermira/Lilly and Sanofi/Regeneron.
The survey evaluated corticosteroid exposure and its impact on people living with eczema. Among other conclusions, it was found that prolonged corticosteroid exposure throughout a person’s lifetime placed them at risk of negative outcomes.
Not One More Life Trusted Messengers Virtual Asthma Coaching Program
People in under-represented communities across the United States struggle with gaining access to quality healthcare. We need to change this reality. This project aims to improve access for Black Americans, Hispanic/Latino Americans, Native Americans and/or low-income families who experience social and economic barriers to quality healthcare.
Our Trusted Messengers program now offers free and easy access to health professionals using virtual asthma coaching.
A virtual asthma visit with this program allows you to connect with a health coach or doctor using your phone or computer. The virtual asthma education program is for people living in the United States with asthma and COPD.
In 2022, Allergy & Asthma Network provided free lung screenings and asthma education to 2,500 people. Those screened and found to be at high risk for poor asthma control were enrolled in a 6-week virtual asthma coaching program. Results of the program show improved asthma disease self-management as well as improved asthma outcomes.
Unidos Hablemos de… Asthma & COVID-19 Conference
We hosted a six-session virtual conference series funded by a Eugene Washington Engagement Award by the Patient-Centered Outcomes Research Institute (PCORI). The series was designed to:
1) inform emerging research needs as it relates to Hispanic and Latino patients with asthma and COVID-19; and
2) use results to better educate Hispanic and Latino patients with asthma to become participants in all aspects of patient-centered outcomes research.
Black People Like Me
We hosted a six-session Black People Like me virtual conference series funded by a Eugene Washington Engagement Award by the Patient-Centered Outcomes Research Institute (PCORI).
The series was designed to:
1) inform emerging research needs as it relates to African American patients with asthma; and
2) use results to better educate African American patients with asthma to become participants in all aspects of patient-centered outcomes research.
Asthma and eczema can impact your ability to take part in your work, school, play or worship activities. But little is known about how well patients understand these conditions and medical care. We decided to gain a better understanding of these unknowns.
In 2021, Allergy & Asthma Network worked with a group of allergists to conduct a survey study to uncover what people living with asthma and/or eczema think about their medical care. The study found that health literacy was oftentimes a barrier to asthma and eczema care among Black and Hispanic/Latino communities.
The Observations of Patient Experience in the Nation (OPEN) Asthma Survey was conducted and sponsored by Boehringer Ingelheim Pharmaceuticals, Inc. The study explored current attitudes of healthcare providers and patients about asthma control.
The goal of the study was to identify areas for improvement. The survey included people living with asthma who were treated with daily prescription medicine, as well as healthcare providers who treat patients with asthma.
Other Research Projects
PCORI: Dissemination of the Evidence Updates for the ASIST asthma research study
Allergy & Asthma Network was invited by the Patient Centered Outcome Research Institute (PCORI) to disseminate research findings of the study, Comparing Two Ways to Manage Asthma in African-American Children — The ASIST Study. This PCORI-funded research compared how well two approaches to managing mild persistent asthma—symptom-based and clinician-based use of a control inhaler—work for children and teens. We will work with the study’s lead author to disseminate the findings published in the Evidence Update for this study. The new PCORI Evidence Update helps inform families and clinicians about choosing the best option for managing mild persistent asthma in children and teens. These communications will be tailored for health care professionals as well as patients and caregivers.
The main goal for this study is to determine if asking asthma screening questions at the beginning of visit will improve the patients’ visit. It will assess asthma patients’ experiences when healthcare providers use the PRECISION program. The last aim is to analyze if there is change in AIRQ™ scores from the initial visit and follow-up visits. This study is a sponsorship with AstraZeneca.
2017 to present
Now in its third year, Allergy & Asthma Network’s research team continues efforts in recruiting 1,200 African-American and Hispanic/Latino adults, ages 18 to 75, who have asthma, use an ICS inhaler, and have had an asthma attack within the past year. As Patient Advocacy Stakeholders, we ensure that the patient voice is heard and incorporated into all aspects of the PREPARE study including study design, study implementation, analysis, interpretation and development of understandable messages for dissemination. Allergy & Asthma Network is advising the research team in study design, materials, recruitment and retention strategies.
See Related Pages
- Patient Focused Drug Development (PFDD)
- Our Research
- Allergy and Asthma Research – Published Literature
- Allergy and Asthma Research Projects and Partnerships
- Get Involved with Research for Allergy, Asthma, and Related Diseases
- Asthma Registry