Asthma, Covid-19, Questions We Need Answered: Black People Like Me Virtual Conference Series

Session 6: Patient Advocacy in Asthma, COVID-19: Where do we go from here?

Recording and resources

On May 13th, we continued the conversation to better understand the challenges Black Americans face in managing their health that lead to asthma and COVID-19 complications.

What we covered

• Dr. Graham will introduce the Not One More Life Trusted Messenger program and show how it is helping communities tackle asthma and COVID-19.
• Patient advisor Mary White will share her story and talk about how to get involved with research and how to become an advocate to help your community.
• Dr. Gupta and Lola Williams will talk about asthma and COVID-19 in black communities and how to combat COVID-19.
• Rev. Michael Stinson will share his person story about surviving COVID-19.
• The speakers will also discuss myths and facts about the COVID-19 vaccine; the need for diversity in research for COVID-19 treatments, and more.

Session 5: My Journey with Asthma, COVID or Other Health Issues…..Letting Researchers Know What Questions We Need Answered

Recording and resources

We continued our conversation on April 8th when we talk about empowering Black Americans to improve their asthma care.

What we covered

A patient panel with share their stories of living with asthma and/or surviving COVID-19. They will talk about why they have participated in clinical trials or why they think patient centered research is important to the whole black community. They will also discuss and invite the audience to use their voices to let researchers know what “we” need.

Session 4: Asthma and COVID-19: Is Research Really that Important To Me? – March 11

Recording and resources

On March 11th, we continued the conversation about empowering Black Americans to improve their asthma care.

What we covered

• What perspectives Black patients shared with researchers regarding COVID-19 and getting the vaccine. Hear what they have to say!
• How Black Asthma patients and caregivers can engage in this new approach to research, called patient centered outcomes research (PCOR), and how it can make a positive difference in the African American community.
• How including patient perspective in research helps people and their caregivers communicate and make informed health care decisions

Session 3: COVID-19 and Black Folk: Changing the Game, Changing the Outcome – February 11

Recording and resources

We continued the conversation on February 11th about empowering Black Americans to improve their asthma care.

What we covered

• How Black patients, families and caregivers are being adversely impacted by COVID-19, and why this is happening.
• The challenges of COVID-19 vaccines – how can we build trust in the vaccine with the African American community?
• What questions Black people want answered about COVID-19 and COVID-19 vaccines.

Session 2: African Americans and research: making it work for folks like us  – January 14

Recording and resources

On January 14 at 5:00 p.m. ET  we continued the conversation about empowering Black Americans to improve their asthma care.

What we covered

• How Black patients, families and caregivers are partnering with researchers and advising researchers on what is important to them.
• How this new approach to research, called patient centered outcomes research, can make a positive difference in the African American community
• What lessons have been learned from this new approach to research and why it’s important for Black people with asthma

Session 1:  Asthma, COVID-19 and questions we need answered – December 15

Recording and resources

We started the conversation on December 15th. It was a powerful experience where we heard patient stories and Dr. LeRoy Graham talked about the challenges of people in the Black community who have asthma and COVID.

What we covered

• The challenges that Black Americans face in managing their health that lead to COVID-19 and asthma complications.
• What matters most to Black people
• What questions Black Americans want answered regarding their health
• The role of clergy in helping Black people to take charge of their health